The Nevada Rare Disease Advisory Council (NV-RDAC) was formed under SB315 during the 2019 legislative session of the Nevada legislature. The NV-RDAC is an advising body of volunteers and advocates from all walks of life that provides a platform for those living in Nevada who are affected by a rare disease.
Our goal is to provide this community a stronger voice in state government. Many other states have established RDACs which have resulted in providing stakeholders an opportunity to make recommendations to state leaders on critical issues including the need for increased awareness, diagnostic tools, and access to affordable treatments.
The NV-RDAC's mission is to improve the quality of life and support care for Nevadans affected by rare diseases through collaboration, education, support, and advocacy. Our council seeks to advocate for Nevadans impacted by rare diseases as well as identify the overall impact these diseases have in our community.
Learn how we’re advancing care for Nevada’s rare disease community.
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We welcome the public to participate in the rare disease advisory meetings! Our meetings are open to the public and take place the first Friday of every month 9:30am PST.
Whether you are a patient, caregiver, healthcare provider, researcher, policymaker, or advocate, your voice matters. The NV-RDAC exists to ensure that every perspective is heard and translated into action that improves lives.
663 million people drink dirty water. Learn how access to clean water can improve health, boost local economies.
663 million people drink dirty water. Learn how access to clean water can improve health, boost local economies.
663 million people drink dirty water. Learn how access to clean water can improve health, boost local economies.
663 million people drink dirty water. Learn how access to clean water can improve health, boost local economies.
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