Our Mission:
The NVRDAC’s mission is to improve the quality of life and support care for Nevadans affected by rare diseases through collaboration, education, support, and advocacy. Our council seeks to advocate for Nevadans impacted by rare diseases as well as identify the overall impact these diseases have in our community.
The Discover the Cellular and Gene (CGT) Access Model, an innovative framework designed to enhance accessibility and deliver cutting-edge treatments to patients. This model aims to streamline processes, improve inequity in care, and ensure that life-changing cellular and gene therapies reach those who need them most. Learn how the CGT Access Model is transforming the future of healthcare and making groundbreaking medical advancements more attainable for everyone.
Who We Are:
The Nevada Rare Disease Advisory Council (NVRDAC) was formed under SB315 during the 2019 legislative session of the Nevada legislature. The NVRDAC is an advising body that provides a platform for those living in Nevada who are affected by a rare disease. Our goal is to provide this community a stronger voice in state government. Many other states have established RDACs which have resulted in providing stakeholders an opportunity to make recommendations to state leaders on critical issues including the need for increased awareness, diagnostic tools, and access to affordable treatments.
What We Do:
The Nevada Rare Disease Advisory Council (NVRDAC) was formed under SB315 during the 2019 legislative session of the Nevada legislature. The NVRDAC is an advising body that provides a platform for those living in Nevada who are affected by a rare disease. Our goal is to provide this community a stronger voice in state government. Many other states have established RDACs which have resulted in providing stakeholders an opportunity to make recommendations to state leaders on critical issues including the need for increased awareness, diagnostic tools, and access to affordable treatments.
We welcome the public to participate in the rare disease advisory meetings. Our meetings are open to the public and take place the first Friday of every month at 9:30am PST.
To participate in our meetings, click here.