Christina Thielst

Christina Thielst

Christina has been actively advocating for consumers of healthcare services for 45 years.  She began working in hospitals as a teenager, obtained a Masters in Health Administration from Tulane University, School of Public Health and Tropical Medicine, and served in hospital leadership throughout her career… twice as chief operating officer. Her efforts to improve the quality and safety of care lead to envisioning opportunities to leverage technologies for sharing health information and teaching new generations of healthcare professionals.

In 2017, her work became more personal when she experienced mysterious symptoms that limited her functional abilities to perform even simple tasks.  Not being satisfied with a diagnosis of idiopathic peripheral neuropathy, she advocated for herself to rule out potential diagnoses and find a doctor who understood.  After seven and a half months, she was diagnosed with Guillain-Barre Syndrome, and then Chronic Inflammatory Demyelinating Polyneuropathy (CIDP).

She continues to bring awareness to the challenges faced by those with her condition and other complex or rare diseases.  This includes the creation of a diagnostic guide for Guillain-Barre Syndrome and related variants for neurologists and other physicians.

In addition to her advocacy work on behalf of the state of Nevada, she is also a patient ambassador for the Chronic Disease Coalition and member of the Rare Action Network of the National Organization of Rare Disease.  She is also a Life Fellow of the American College of Healthcare Executives.