Naja Bagner is a patient with Sickle Cell Disease born and raised in Toledo, Ohio. Naja relocated to Las Vegas for better healthcare. In relocating, Naja has experience the highs and lows of SCD medical treatment in Nevada. Through her experience and desire to get better connected with the SCD community in Las Vegas to give and receive support, Naja became connected with Dreamsickle Kids Foundation. Naja has recently become the Chair of the Community Health committee with Dreamsickle Kids where her experience as a SCD patient and advocate along with being a certified Phlebotomist and soon to be Community Health Worker will allow her skills to be utilized by providing rapid Sickle Cell Trait testing to the community. Naja is an integral part of the NV SCD College Tour created by Dreamsickle Kids to educate future medical and public health students on SCD and the experience of patients in the healthcare system in effort to promote more quality and equitable treatment of people with SCD. As a RDAC member, Naja hopes to bring her experience and insight in relation to SCD which is one of the 7,000 Rare Diseases in effort to promote the implementation of better resources and healthcare for the Rare Disease community in Nevada.