Pamela White

Pamela White’s journey as an Ambassador for Sickle Cell Disease (SCD) advocacy stems from her role as the mother of two adult children living with SCD. Having navigated every challenge and success throughout their lives, Pam has firsthand experience with the complexities of raising children with SCD. She is grateful for the support of her husband of 30 years, who has been with her every step of the way as they cared for their 43-year-old daughter and 23-year-old son.

A Las Vegas resident for over 40 years, Pam has been actively involved in the community, raising awareness and promoting education about SCD through several organizations, including the Nevada Childhood Cancer Foundation (NVCCF) and Cure 4 The Kids Foundation. While working with NVCCF, Pam organized several “firsts” in Las Vegas, including the inaugural SCD symposium in 2011, SCD Walk-A-Thons from 2011 to 2013, and spearheading SCD representation in the Martin Luther King Parade in 2013.

After retiring from 34 years of service with the State of Nevada, Pam received a renewed call to action in 2019 when she founded the nonprofit BTG – Adult Sickle Cell Disease Foundation of Nevada. The foundation’s mission is to improve the quality of life for individuals with Sickle Cell Disease, Thalassemia, and related blood disorders by providing access to medical, educational, and social resources throughout Nevada.

Pam’s organization offers a variety of programs, including monthly support group meetings, the “It’s Time” transition program for youth ages 13-25, and specialized support groups for adults, caregivers, and men-only meetups. BTG also hosts four major events annually to raise awareness and educate the Las Vegas community about SCD.

Pam’s vision is for families affected by SCD to live limitless lives, looking beyond the pain and pursuing their dreams despite the challenges. Her advocacy has also extended to legislative efforts, as she worked with Senator Neal on Nevada’s first Sickle Cell bill, AB254, which focuses on surveillance and improving access to FDA-approved medications for Sickle Cell patients. The bill was signed into law by Governor Sisolak in 2019.

Pam’s lifelong dedication to the SCD community continues to make a meaningful impact on those affected by the disease across Nevada.