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The members of the volunteer council represent all the sectors in the rare disease world. The Department of Health and Human Services Rare Disease Advisory council consists of Physicians who practice in the area of cardiology, emergency care, neurology, oncology, orthopedics, pediatrics, or primary care and provide care to patients with rare diseases. Nurses who provide care to these patients, administrators of hospitals, and clinics that provide care to patients with rare diseases. As well as individuals (aged 18 years or older) living with a rare disease or parent who has cared for a child with a rare disease. And lastly, organizations that provide services to these patients.
CURRENT NVRDAC COUNCIL MEMBERS
Annette Logan-Parker
Chair
Gina Glass
Vice Chair
Amber Federizo
APRN, FNP-BC
Dr. Sumit Gupta
MD
Melissa Bart-Plange
Paul Niedermeyer
Valerie Porter
DNP, BSN, MBA
Jennifer Millet
MSN, RN
Dr. Ihsan Azzam
MD, PhD
Naja Bagner
Dr. Craig Vincze
MD
Christina Thielst
LFACHE
Pam White
Kim Anderson
Brigette Cole
Dr. Verana Samara
The Following Council Member Positions are Currently Vacant
- (1) One physician who practices in the area of cardiology, emergency care, neurology, oncology, orthopedics, pediatrics, or primary care and provides care to patients with rare diseases
- (1) One Division representative who provides education concerning rare diseases or the management of chronic conditions
- (1) One person over 18 years of age who have suffered from or currently suffer from a rare disease
If you are interested in being considered for a future Council Member appointment to the RDAC, contact Julia Peek, Deputy Administrator, by phone 775-684-5902, by email at jpeed@health.nv.gov, or by mail at: 4150 Technology Way, Ste. 300, Carson City, NV 8970
Please submit a letter of interest and a resume or curriculum vitae. Materials submitted will be forwarded to the DHHS director for consideration for possible appointment.