As we step into the 2025 legislative session, the Nevada Rare Disease Advisory Council (RDAC) is committed to serving as a vigilant advocate for the rare disease community across our state. This year brings new opportunities to influence policies that can enhance care, broaden access to treatments, and support innovative solutions in rare disease management.

Nevada’s rare disease population faces unique challenges that require thoughtful, targeted legislation to ensure equitable healthcare access and improved quality of life. That’s why the RDAC will monitor key bills, amendments, and regulatory updates closely, focusing on initiatives that have the potential to create meaningful, positive change for individuals and families affected by rare diseases.

Throughout the session, we will keep this page updated with the latest developments on legislation that impacts our community. Whether it’s new policies addressing insurance coverage, funding for medical research, or initiatives to streamline access to treatments, our goal is to ensure that the rare disease community has a clear voice in Nevada’s legislative process.

Thank you for joining us on this journey. Your support strengthens our mission and ensures that no voice goes unheard. Stay tuned for updates, action alerts, and opportunities to get involved!