What Is a Rare Disease Advisory Council?
Key Takeaways Rare diseases are common in aggregate. Each one affects fewer than 200,000 Americans, but more than 10,000 of them together touch over 30 million people, close to one in ten of us. An…
All posts by .
When Science Becomes Personal: A Father’s Mission to Fund What Others Won’t
NV-RDAC Member Profile: Dr. Craig Vincze, Ph.D. March 2026 | Member-by-Member Series In May 2021, a 22-year-old University of Nevada, Reno student named Max Vincze noticed a small lump on his neck while studying for…
Mallory Carvalho
NV-RDAC MemberMSW Mallory Carvalho is a social worker, advocate, and childhood cancer survivor whose professional and personal experiences uniquely position her to serve the rare disease community in Nevada. As a former pediatric oncology patient…
Every 15 Minutes, a Baby Is Born With a Heart That Needs Help
NV-RDAC Member Profile: Dr. William N. Evans, MD February 2026 | Member-by-Member Series Nearly 40,000 babies are born with congenital heart disease in the United States every year. That’s one child every 15 minutes —…
Madison Bowe
NV-RDAC Member Rare Disease Advocate | Patient Leader | Emergency Services Student Madison Bowe is a passionate advocate and emerging leader in the rare disease community, living with Stiff Person Syndrome (SPS)—a one-in-a-million autoimmune neuromovement…
Dr. William Evans, MD
NV-RDAC Member MD Professor of Clinical Pediatrics, Kirk Kerkorian School of Medicine at UNLVDirector, Children’s Heart Center Nevada | Las Vegas, NV Dr. William N. Evans is a board-certified pediatric cardiologist and Professor of Clinical…
Provide pure water and fresh food for syrian poor people
Founded by berlin’s clubcommissioner alongside amsterdam’s with nightori mayor, the creative footprint works with our partner Poor Advisor, local nyc scene experts and researchers to gather data need for regular life. Throw myself down teems…
South african pre primary school build for children
Founded by berlin’s clubcommissioner alongside amsterdam’s with nightori mayor, the creative footprint works with our partner Poor Advisor, local nyc scene experts and researchers to gather data need for regular life. Throw myself down teems…
Brilliant After All A New Album by Rebecca: Help poor people
Founded by berlin’s clubcommissioner alongside amsterdam’s with nightori mayor, the creative footprint works with our partner Poor Advisor, local nyc scene experts and researchers to gather data need for regular life. Throw myself down teems…
Provide pure water for syrian poor people
Founded by berlin’s clubcommissioner alongside amsterdam’s with nightori mayor, the creative footprint works with our partner Poor Advisor, local nyc scene experts and researchers to gather data need for regular life. Throw myself down teems…