Category Archives for Blog Posts

What the Nevada Rare Disease Advisory Council Does
Blog Posts

What the Nevada Rare Disease Advisory Council Does

Key Takeaways The council’s job is written into law. SB315 (2019) charges the NV-RDAC with specific, required duties, not vague discussion, ranging from studying rare disease burden to filing an annual report with policy recommendations. …
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What Is a Rare Disease Advisory Council?
Blog Posts

What Is a Rare Disease Advisory Council?

Key Takeaways Rare diseases are common in aggregate. Each one affects fewer than 200,000 Americans, but more than 10,000 of them together touch over 30 million people, close to one in ten of us. An…
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When Science Becomes Personal: A Father’s Mission to Fund What Others Won’t
Blog Posts

When Science Becomes Personal: A Father’s Mission to Fund What Others Won’t

NV-RDAC Member Profile: Dr. Craig Vincze, Ph.D. March 2026 | Member-by-Member Series In May 2021, a 22-year-old University of Nevada, Reno student named Max Vincze noticed a small lump on his neck while studying for…
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Every 15 Minutes, a Baby Is Born With a Heart That Needs Help
Blog Posts

Every 15 Minutes, a Baby Is Born With a Heart That Needs Help

NV-RDAC Member Profile: Dr. William N. Evans, MD February 2026 | Member-by-Member Series Nearly 40,000 babies are born with congenital heart disease in the United States every year. That’s one child every 15 minutes —…
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