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Key Takeaways The council’s job is written into law. SB315 (2019) charges the NV-RDAC with specific, required duties, not vague discussion, ranging from studying rare disease burden to filing an annual report with policy recommendations. …

Key Takeaways Rare diseases are common in aggregate. Each one affects fewer than 200,000 Americans, but more than 10,000 of them together touch over 30 million people, close to one in ten of us. An…

NV-RDAC Member Profile: Dr. Craig Vincze, Ph.D. March 2026 | Member-by-Member Series In May 2021, a 22-year-old University of Nevada, Reno student named Max Vincze noticed a small lump on his neck while studying for…

NV-RDAC MemberMSW Mallory Carvalho is a social worker, advocate, and childhood cancer survivor whose professional and personal experiences uniquely position her to serve the rare disease community in Nevada. As a former pediatric oncology patient…

NV-RDAC Member Profile: Dr. William N. Evans, MD February 2026 | Member-by-Member Series Nearly 40,000 babies are born with congenital heart disease in the United States every year. That’s one child every 15 minutes —…

NV-RDAC Member Rare Disease Advocate | Patient Leader | Emergency Services Student Madison Bowe is a passionate advocate and emerging leader in the rare disease community, living with Stiff Person Syndrome (SPS)—a one-in-a-million autoimmune neuromovement…

NV-RDAC Member MD Professor of Clinical Pediatrics, Kirk Kerkorian School of Medicine at UNLVDirector, Children’s Heart Center Nevada | Las Vegas, NV Dr. William N. Evans is a board-certified pediatric cardiologist and Professor of Clinical…

NV-RDAC Member MD Pediatric Neurologist & Epileptologist | Las Vegas, NV Dr. Devraj Chavda is a board-certified pediatric neurologist and epileptologist dedicated to advancing care for children with complex neurological disorders. Currently practicing in Las Vegas,…

NV-RDAC Member Melissa Bart-Plange is a dedicated advocate for rare disease healthcare, inspired by her personal journey as a parent to a child with a rare disease. Her experience navigating the challenges of the healthcare…

NV-RDAC Member Kim Anderson is a dedicated healthcare leader and a passionate advocate for Nevada’s rare disease and palliative care communities. As a member of the Nevada Rare Disease Advisory Council (NV-RDAC) and the state’s…