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Administrator, Nevada Medicaid Representative of the Division who provides education concerning rare diseases or the management of chronic conditions Ann serves as Administrator at the Division of Nevada Medicaid. Prior to this role, Ann served…

Nevada's first combined patient, provider, and clinical picture of rare disease care. What 508 families and 69 providers reported, and what comes next.

NV-RDAC Member Profile: Madison Bowe September 2026 | Member-by-Member Series Madison Bowe was training to save lives when her own body gave her a warning. She was in an Advanced Emergency Medical Technician class at her…

Nevada's first combined patient, provider, and clinical picture of rare disease care. What 508 families and 69 providers reported, and what comes next.

As of May 2026, 34 states have a Rare Disease Advisory Council, covering 78% of the country. See where the movement stands and how Nevada's council fits in.

NV-RDAC Member Profile: Brigette Cole July 2026 | Member-by-Member Series Brigette Cole was diagnosed just before her 28th birthday. It was almost 20 years ago in Reno, and a breast cancer diagnosis in a woman that…

Key Takeaways The council’s job is written into law. SB315 (2019) charges the NV-RDAC with specific, required duties, not vague discussion, ranging from studying rare disease burden to filing an annual report with policy recommendations. …

Key Takeaways Rare diseases are common in aggregate. Each one affects fewer than 200,000 Americans, but more than 10,000 of them together touch over 30 million people, close to one in ten of us. An…

NV-RDAC Member Profile: Dr. Craig Vincze, Ph.D. March 2026 | Member-by-Member Series In May 2021, a 22-year-old University of Nevada, Reno student named Max Vincze noticed a small lump on his neck while studying for…

Visiting Lecturer, University of Nevada, Las Vegas; Social Worker Additional member appointed by Council vote under NRS 439.5075 Mallory Carvalho is a social worker, advocate, and childhood cancer survivor whose professional and personal experiences uniquely…