When Science Becomes Personal: A Father’s Mission to Fund What Others Won’t

When Science Becomes Personal: A Father’s Mission to Fund What Others Won’t

NV-RDAC Member Profile: Dr. Craig Vincze, Ph.D. March 2026 | Member-by-Member Series In May 2021, a 22-year-old University of Nevada, Reno student named Max Vincze noticed a small lump on his neck while studying for…
Mallory Carvalho

Mallory Carvalho

Mallory Carvalho, MSW Partnerships & Advocacy Liaison, Cure 4 The Kids Foundation | Las Vegas, NV Mallory Carvalho is a social worker, advocate, and childhood cancer survivor whose professional and personal experiences uniquely position her…
Every 15 Minutes, a Baby Is Born With a Heart That Needs Help

Every 15 Minutes, a Baby Is Born With a Heart That Needs Help

NV-RDAC Member Profile: Dr. William N. Evans, MD February 2026 | Member-by-Member Series Nearly 40,000 babies are born with congenital heart disease in the United States every year. That’s one child every 15 minutes —…
Madison Bowe

Madison Bowe

Madison Bowe Rare Disease Advocate | Patient Leader | Emergency Services Student Madison Bowe is a passionate advocate and emerging leader in the rare disease community, living with Stiff Person Syndrome (SPS)—a one-in-a-million autoimmune neuromovement…
Dr. William Evans, MD

Dr. William Evans, MD

Dr. William Evans, MD Professor of Clinical Pediatrics, Kirk Kerkorian School of Medicine at UNLVDirector, Children’s Heart Center Nevada | Las Vegas, NV Dr. William N. Evans is a board-certified pediatric cardiologist and Professor of…
Dr. Devraj Chavda, MD

Dr. Devraj Chavda, MD

Dr. Devraj Chavda, MD Pediatric Neurologist & Epileptologist | Las Vegas, NV Dr. Devraj Chavda is a board-certified pediatric neurologist and epileptologist dedicated to advancing care for children with complex neurological disorders. Currently practicing in Las…
Melissa Bart-Plange

Melissa Bart-Plange

Melissa Bart-Plange is a dedicated advocate for rare disease healthcare, inspired by her personal journey as a parent to a child with a rare disease. Her experience navigating the challenges of the healthcare system has…
Kim Anderson

Kim Anderson

Kim Anderson is a dedicated healthcare leader and a passionate advocate for Nevada’s rare disease and palliative care communities. As a member of the Nevada Rare Disease Advisory Council (NV-RDAC) and the state’s Palliative Care…
Pamela White

Pamela White

Pamela White’s journey as an Ambassador for Sickle Cell Disease (SCD) advocacy stems from her role as the mother of two adult children living with SCD. Having navigated every challenge and success throughout their lives,…
Dr. Sumit Gupta

Dr. Sumit Gupta

Dr. Gupta was born and raised in India and completed his medical school at Kasturba Medical College in Manipal, India. He served his Pediatrics residency at Mount Sinai Hospital in Chicago from 2015 to 2018.…