Charitious

Senior Medical Science Liaison, Hematology, Octapharma Registered nurse who provides care to patients with rare diseases Amber Federizo was born and raised in the rural reaches of Nevada, Amber has a passion for reaching those…

Executive Director, Dreamsickle Kids Foundation; Parent-Advocate Additional member appointed by Council vote under NRS 439.5075 Georgené (Gina) Glass is the founder and Executive Director of Dreamsickle Kids Foundation, Inc, the first Sickle Cell Disease (SCD)…

Chief Medical Officer, Nevada Division of Public and Behavioral Health Representative of the Division who provides epidemiological services Dr. Ihsan Azzam oversees public health surveillance, epidemiology and disease control activities. He advises state and local…

Veneta Lapera, BSN, RN Bio Coming Soon….

Dr. Nik Rashid, M.D. Bio Coming Soon….

Dr. Susanna Sorrentino, ME, FACMGG, FAAP Dr. Sorrentino is a graduate of Ross University School of Medicine. She completed her residency in pediatrics at New York University Winthrop Hospital in Mineola, NY and her fellowship…

Clinical Director of Medical-Surgical Services, University Medical Center of Southern Nevada Additional member appointed by Council vote under NRS 439.5075 Jennifer Millet is the  Director of Medical Surgical Services at University Medical Center of Southern…

Healthcare Advocate Additional member appointed by Council vote under NRS 439.5075 Paul Niedermeyer is President of PN LLC, a management consulting firm, where he provides expertise by advising executives and investors on commercial and technical…

Self-Advocate Person 18 years of age or older who has suffered or currently suffers from a rare disease Christina has been actively advocating for consumers of healthcare services for 45 years.  She began working in…

NP Hospitalist, Internal Medicine Inpatient Service, VA Southern Nevada Healthcare System Registered nurse who provides care to patients with rare diseases Valerie is an RN with 34 years of combined experience in multiple areas including,…