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NV-RDAC Member Profile: Dr. William N. Evans, MD February 2026 | Member-by-Member Series Nearly 40,000 babies are born with congenital heart disease in the United States every year. That’s one child every 15 minutes —…

Rare Disease Patient Advocate Additional member appointed by Council vote under NRS 439.5075 Rare Disease Advocate | Patient Leader | Emergency Services Student Madison Bowe is a passionate advocate and emerging leader in the rare…

Pediatric Cardiologist; Founder and Co-Director, Children’s Heart Center Nevada Additional member appointed by Council vote under NRS 439.5075 Professor of Clinical Pediatrics, Kirk Kerkorian School of Medicine at UNLVDirector, Children’s Heart Center Nevada | Las…

Pediatric Neurologist; Co-Founder, Neurology and Epilepsy Specialists, PC Physician who provides care to patients with rare diseases Pediatric Neurologist & Epileptologist | Las Vegas, NV Dr. Devraj Chavda is a board-certified pediatric neurologist and epileptologist dedicated…

Parent-Advocate Parent or guardian with experience caring for a child with a rare disease Melissa Bart-Plange is a dedicated advocate for rare disease healthcare, inspired by her personal journey as a parent to a child…

Administrator, Amore Hospice Care Chair of the State Advisory Council on Palliative Care and Quality of Life, created by NRS 232.4855, or designee Kim Anderson is a dedicated healthcare leader and a passionate advocate for…

Founder and Executive Director, Bridging The Gap Adult Sickle Cell Disease Foundation of Nevada; Parent-Advocate Parent or guardian with experience caring for a child with a rare disease Pamela White’s journey as an Ambassador for…

Pediatric Hematology/Oncology, Cure 4 The Kids Foundation; Chair, Nevada Newborn Screening Advisory Committee Physician who provides care to patients with rare diseases Dr. Sumit Gupta was born and raised in India and completed his medical…

Neurologist, Carson Tahoe Health Physician who provides care to patients with rare diseases Dr. Verena Samara is a neuromuscular specialist with expertise in EMG/nerve conduction studies with Carson Tahoe Medical Group in Carson City, NV.…

Director of Programs and Services, Northern Nevada Children’s Cancer Foundation Representative of an organization dedicated to providing services to patients with rare diseases in northern Nevada Brigette Cole brings more than 13 years of experience…