Our Work in Action
Learn how we’re advancing care for Nevada’s rare disease community.
Every year builds on the last. Explore our full history of reports and strategic plans:
Our Mission
The NV-RDAC's mission is to improve the quality of life and support care for Nevadans affected by rare diseases through collaboration, education, support, and advocacy. Our council seeks to advocate for Nevadans impacted by rare diseases as well as identify the overall impact these diseases have in our community.
Cellular & Gene Therapy in Nevada
Cellular and gene therapies are transforming treatment for rare diseases—offering the potential for cures where none existed before. Learn what therapies are available in Nevada, where patients can access them, and how NV-RDAC is working to expand access for all Nevadans.
Who We Are
The Nevada Rare Disease Advisory Council (NV-RDAC) was formed under SB315 during the 2019 legislative session of the Nevada legislature. The NV-RDAC is an advising body that provides a platform for those living in Nevada who are affected by a rare disease.
What We Do
Our goal is to provide this community a stronger voice in state government. Many other states have established RDACs which have resulted in providing stakeholders an opportunity to make recommendations to state leaders on critical issues including the need for increased awareness, diagnostic tools, and access to affordable treatments.
NV-RDAC Monthly Meetings
We welcome the public to participate in the rare disease advisory meetings! Our meetings are open to the public and take place the first Friday of every month at 9:30am PST.
NV-RDAC Meeting Minutes
Meeting minutes are the official, written record of discussions, decisions, and action items that take place during our monthly meetings.