The Nevada Rare Disease Advisory Council (NVRDAC) was formed under SB315 during the 2019 legislative session of the Nevada legislature. The NVRDAC is an advising body that provides a platform for those living in Nevada who are affected by a rare disease. Our goal is to provide this community a stronger voice in state government. Many other states have established RDACs which have resulted in providing stakeholders an opportunity to make recommendations to state leaders on critical issues including the need for increased awareness, diagnostic tools, and access to affordable treatments. 

The NVRDAC’s mission is to improve the quality of life and to support care for Nevadans affected by rare diseases through collaboration, education, support, and advocacy. Our council seeks to advocate for Nevadans impacted by rare diseases as well as identify the overall impact of these rare diseases in our community.